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Normally, Bethany and other advocates from Maine travel to Washington, DC in May to participate in the annual training Summit and Lobby Day, where they meet with Maine’s congressional members or their staff. Although lobby day meetings were held virtually this year, advocates from Maine still met with Maine’s delegation to discuss legislative priorities that would positively impact research for a breast cancer vaccine as well as supports and resources for those living with and at risk for breast cancer. #NBCCOnTheHill
Some participants who fill out the survey will also be invited to participate in an optional sub-study, which includes a medical record review, a blood or saliva sample, and tumor analysis. Findings from the survey and optional sub-study may help the research team discover how to help people live longer after a diagnosis of metastatic breast cancer.
The study is recruiting internationally women and men age 18 or older who have been diagnosed with metastatic (or stage IV) breast cancer. Click here to learn more or to join the study.
AAW states, "Our wish is that our recipients hear the words 'you are cancer free' from their doctors and continue on their life journey." Visit the AAW website for more information or to submit an application.
The Medomak Valley High School Athletic Department, in conjunction with the Medomak Valley All Sports Boosters, held their Third Annual “Paws for the Cause” basketball game to benefit the Maine Breast Cancer Coalition on January 17, 2020 at Medomak Valley High School, when the Medomak Valley Panthers played host to the Oceanside Mariners.
The Medomak Valley High School Athletic Department, in conjunction with the Medomak Valley All Sports Boosters is proud to announce the Third Annual “Paws for the Cause” basketball game to benefit the Maine Breast Cancer Coalition. The event will be held on January 17, 2020, at Medomak Valley High School, when the Medomak Valley Panthers play host to the Oceanside Mariners.
The game is sure to once again this year, be a “full house,” as back-to-back games featuring the varsity girls at 5:30 p.m. followed by the varsity boys at 7 p.m. attempt to “Pink Out” the Medomak Valley High School gymnasium.
For these special games, both of the Medomak Valley teams will be wearing unique, pink uniforms. Additionally, commemorative T-shirts will be available for students and fans of both schools to purchase leading up to the game, and on the evening of the games as well. Read more.
Last week, Rosemarie (Ro) LeGasse, the Maine Breast Cancer Coalition's dedicated Support Service Fund program assistant, and Ro's uncle, Gene Moreau, had the pleasure of meeting long-term donor Darlene Gleba in Rockland.
Every year since 2011, Darlene and her husband John have been major donors to the Support Service Fund through fundraising at their annual Gleba Open golf tournaments. Click here to read about the 2019 tournament.
All of us at Maine Breast Cancer Coalition are so appreciative of the Gleba's generosity!
Photo: Rosemarie LeGasse (left), Darlene Gleba (right), and Gene Moreau
In recognition of “Breast Cancer Awareness Month” this past October, Hannaford supermarkets throughout Maine made it easy for their customers to help Maine residents with unmet breast cancer or breast health-related needs.
For the sixth consecutive year, during October, Maine Hannaford customers were able to donate $2 or $5 at the register of their local stores, raising $7,710.46 for the Maine Breast Cancer Coalition!
Earlier this year, Hannaford Supermarkets donated $2,500 worth of food cards to
the Maine Breast Cancer Coalition. These are being awarded to qualified Support
Service Fund applicants who need support for living expenses and nutrition while
in breast cancer treatment.
Maine Breast Cancer Coalition is grateful to Hannaford Supermarkets for their support and to all the generous shoppers who made donations. These donations will make a difference in the lives of Maine residents in need.
For more information about the club or to join, visit their Facebook page here.
Photo: front row, third and fourth from left, MBCC representatives Carol Beagan (MBCC treasurer and Support Service Fund Committee member); Ro LeGasse (Support Service Fund program assistant)
Click here to read about the National Breast Cancer Coalition's Artemis Project, which was referenced in Dr. Susan Love's press release.
They raised an amazing $2,406 for the Maine Breast Cancer Coalition’s Support
Service Fund in just one day! That brings the three-year total of funds raised
at the tournaments to well over $8,000! All proceeds were donated to MBCC’s Support Service Fund and will help Maine residents
with unmet breast cancer or breast health related needs.
All of us at Maine Breast Cancer Coalition are grateful to the owners of DND Disc Golf and all those who took part in the fundraiser!
For the sixth consecutive year, Darlene and John Gleba held the annual Gleba Open Golf Tournament to raise funds for the Maine Breast Cancer Coalition’s Support Service Fund. Many thanks to the Glebas for their generosity! Thank you also to all the union carpenters who came from out of state to help raise the money. This year's tournament raised $5,651! This donation will go a long way in helping qualified Support Service Fund applicants in need. All of us at MBCC are so grateful for the long-term, generous support!
The third annual Pink Cart to the Cure benefit golf event was held at the Sunset Ridge Golf Links in Westbrook on September 15, 2019. It included a golf game, food, music, a silent auction, raffles, and prizes. It was a huge success and a lot of fun, too, raising $5,000 for Maine Breast Cancer Coalition’s Support Service Fund!
Many thanks to Sunset Ridge Golf Links, which hosted the event, to all who attended, to the business and individual sponsors, to the many volunteers, and a special thank you to event chair April Burnell and co-chair Charlotte Darling, who both worked so hard all year to make this wonderful event happen. All of us at Maine Breast Cancer Coalition are so grateful!
Hope to see you there!
This BCAM, we would like to extend our many thanks to Congressman Jared Golden, Congresswoman Chellie Pingree and Senator Angus S. King, Jr. for thinking BEYOND pink and cosponsoring H.R. 2178 and S. 1374 - the Metastatic Breast Cancer Access to Care Act - a bipartisan bill to waive Medicare and SSDI waiting periods for women and men with metastatic breast cancer.
This important legislation goes a long way to ensure that women and men living with metastatic breast cancer have access to the support and medical care they need. The ongoing support of local, state and national breast cancer advocacy efforts by Maine's congressional delegation is greatly appreciated - during Breast Cancer Awareness Month and beyond!
Guest speakers at the conference will include motivational speaker, Barb Cookson;
Stephanie McLeod-Estevez, LCPC, (The Psychology of Cancer); Ralph Moss (author
of the Moss Reports). The conference will also include a patient/survivor
panel, break-out sessions, complementary therapies, community resources, and a complimentary
The conference is FREE and will be held at the Atlantic Oceanside Conference Center, 119 Eden Street in Bar Harbor from 9:00 am – 3:30 pm, with registration beginning at 8:00 am. For more information please call the Beth C. Wright Cancer Resource Center at 207-664-0339. REGISTER TODAY.
Maine Breast Cancer Coalition will have a table there. We hope you will stop by!
Last year, they raised $3,620 for the Maine Breast Cancer Coalition’s Support Service Fund in just one day! The year before, they raised more than $2,300. This year’s proceeds will also be donated to the Support Service Fund and will help Maine residents with unmet breast cancer or breast health related needs.
DND Disc Golf is located at 214 Philbrick Road, Sidney. For more information about this fun event, contact DND Disc Golf at 207-313-6222 or visit their Facebook page here.
Check out the online benefit silent auction at Bidding Owl. There are lots of great items up for bid!
The event will be held on Sunday, September 15, 2019 at Sunset Ridge Golf Links at 771 Cumberland St, Westbrook, Maine.
See the poster above for signup information and details!
The Brewer Fraternal Order of Eagles Aerie and the Brewer Ladies' Auxiliary presented checks totaling $3,169 to the Maine Breast Cancer Coalition Support Service Fund. They also announced that the Support Service Fund will receive an additional donation of $5,240 through the statewide Eagles organization, making a total donation of $8,409! This extraordinarily generous contribution will go a long way in helping Maine residents in need of breast cancer or breast health related assistance.
The Brewer Maine Fraternal Order of Eagles Aerie and Ladies Auxiliary, along with
the State Eagles organization, have been a major source of funding for the Maine Breast
Cancer Coalition for many years. We deeply appreciate their hard work in fundraising
throughout the year, and their hospitality on this wonderful evening!
Top photo, left to right:
Larry Dawson, Secretary of the Brewer Fraternal Order of Eagles and the Eagles State organization; Ro LeGasse, MBCC Support Service Fund program assistant
Bottom photo, left to right: Brenda Thurston, past President of the Brewer Fraternal Order of Eagles Ladies Auxiliary; Steven Johnson, Vice President of the Brewer Aerie; Christine Haiss, MBCC Board of Directors and Support Service Fund Committee member
Please use this link to support the important work of our organization - helping women and men living with and at risk of breast cancer here in Maine. All donations through the PayPal Giving Fund go to our Support Service Fund.
October, “Breast Cancer Awareness Month”, is a time to reflect on the
impact that breast cancer has on the lives of many Maine residents. The need for research
leading to eradication of this disease is urgent. But there is also a need to take
action to assist those currently dealing with a breast cancer diagnosis or in need
of breast health services. The Maine Breast Cancer Coalition’s Support
Service Fund strives to fill this need for Maine residents.
For the past eighteen years, the Maine Breast Cancer Coalition’s Support Service Fund has been an important “safety net” program for Maine people needing breast health or breast cancer related assistance and who have nowhere else to turn. This month marks an important milestone for the Fund: During the past eighteen years we have helped more than four thousand Maine residents with a total of more than $2,000,000 in grant awards. Read more.
AUGUSTA, Maine—Maine Secretary of State Matthew Dunlap today announced the 10-year anniversary of the initial release of Maine Breast Cancer Support specialty license plate, which raises funds to combat breast cancer in Maine.
The plates were first made available to the public on October 1, 2008. Today, there are 25,002 of these “pink ribbon” plates on the road, which have raised $3,141,385, with more than $2,950,047 going to the Breast Cancer Support Services Fund over the past 10 years.
“I am proud that the State of Maine has been a leader in the fight against breast cancer. It’s nearly impossible to find someone whose life has not been touched by cancer, whether they’ve experienced it personally or through the journey of a family member, friend or coworker. And that’s probably why this plate is so popular,” said Secretary Dunlap. “The pink ribbon license plates have allowed Mainers in every community to make their voice heard and to contribute to this ongoing battle. The funds raised by these plates make a difference in people’s lives throughout the state.”
The Maine Breast Cancer Coalition is heartbroken at the recent loss of long-time volunteer member, Carmen Darkis. When Carmen was 19 years old, her mother was diagnosed with breast cancer and passed away at the age of 62, just four short years later. It was at this time that cancer changed Carmen’s life forever.
Carmen’s connection to breast cancer became personal when she was diagnosed in 1988. Carmen had a mastectomy and soon after surgery, joined the support group “Encore” at the YWCA. In her own words “the support group helped me cope, educated me about my cancer, enabled me to make new friendships…It was very much a learning experience for me and I wasn’t afraid anymore to talk about breast cancer. It also helped me cope with life at my workplace.”
In 1993, Carmen was again diagnosed, this time with stage 4 metastatic breast cancer and despite being in constant treatment, in 1998 she decided that it was time to stop talking about breast cancer and do something about it. She signed up as a volunteer member of the Maine Breast Cancer Coalition (MBCC). During her 20 years as a faithful MBCC advocate and volunteer, Carmen was actively involved in the work of the Coalition. For 12 years, she held the office of secretary, and when the Maine Breast Cancer Coalition established our Support Service Fund in 2000, Carmen - passionate about the mission to help financially assist women and men who were diagnosed with breast cancer or had other breast health related needs - jumped in with both feet. She found great fulfillment in sitting on the Support Service Fund Committee which oversaw that fund - right up until metastatic breast cancer robbed her from us earlier this month.
During her time with the Maine Breast Cancer Coalition, Carmen made three trips to the National Breast Cancer Coalition’s Advocate Conference in Washington, D.C. and lobbied on Capitol Hill to encourage Maine’s congressional delegation to enact policies impactful to the lives of those living with and at risk of breast cancer.
In 2012, Carmen was the recipient of the "Lifetime Inspiration Award", awarded by the Maine Cancer Foundation to "an individual who has achieved success above and beyond the ordinary in the fight against breast cancer in Maine." She was nominated by long-time friend, Robin Long of Caring Connections at the Bangor Y. Robin had this to say when she nominated Carmen in 2012: “For close to 20 years Carmen has been on some kind of breast cancer treatment. I find her inspirational because, in her own words, ‘I don't let the cancer live my life, I live my life because I love being alive.’ In spite of being in treatment almost continously for the last two decades, she has done the things she enjoys. She is always willing to speak with someone who has been newly diagnosed with metastatic disease, providing a postive and hopeful message.”
This is just who Carmen was…positive…hopeful…strong. Even though she had no idea where her strength came from, she was a miracle who beat the odds (and 3-year average life expectancy for being diagnosed stage 4 metastatic) by living with metastatic breast cancer for 25 years. She didn’t just live, she thrived. She was actively involved in our work right up until the very end and will be greatly missed when we convene for our next face-to-face meeting in June. There is no doubt that looking ahead, much of our MBCC mission will be compelled forward under the motivation of being “for Carmen.”
Finally, we would like to leave you with a message to anyone out there who has been diagnosed with stage 4 metastatic breast cancer from Carmen herself: “Because there are so many different kinds of breast cancers, everybody is so different. What is right for one woman might not be right for another. Communicate with your oncologist. Let him/her know how you feel and be your own advocate or if you can’t, let a family member be one for you. I believe that everyone should live their life one day at a time and to the fullest, and always remember that quality of life means more than quantity.” Carmen fully embodied this message every single day of her life – before and after her metastatic breast cancer diagnosis - and we will continue to carry on our mission in her memory and honor.
For information call 207-478-0388 or email Brooke Ismail at firstname.lastname@example.org
The members of the Maine Breast Cancer Coalition were heartbroken to hear that Penny died on Saturday, July 22, 2017, at the Androscoggin Hospice House, after living with metastatic breast cancer for several years. We are so thankful for the time we spent with Penny and for her dedication to the Maine Breast Cancer Coalition. We extend our deepest condolences to Penny's husband, Kevin, her son, Chris, stepdaughter, Kate, and all of her extended family and friends.
We were all very blessed to have known her and will continue to advocate for all those living with and at risk of breast cancer to honor her memory.
You may read the obituary and leave condolence messages here.
Currently, Medicare and many private insurance policies fail to cover the costs of the daily compression supplies people with lymphedema need to control their swelling. People who can’t afford these supplies are left with worsening lymphedema, which can lead to infections and even long-term disability.
MBCC President Bethany Zell wrote, "Breast Cancer Deadline 2020® is the National Breast Cancer Coalition's global initiative to know how to end breast cancer by January 1, 2020. As leaders in the breast cancer movement and supporters of Breast Cancer Deadline 2020®, we are committed to being a part of this important work."
To purchase: This double CD set is available for only $19.99 at all Bull Moose Music locations statewide. It can also be ordered from Maine Breast Cancer Coalition directly. Download the order form here.
If you have a pink ribbon-plated car, be on the lookout for a special THANK YOU note from the Maine Breast Cancer Coalition … coming soon to YOUR CAR!!!
All services are free of charge. SHARE provides telephone support, support groups, educational programs, and advocacy activities.
TOLL-FREE HELPLINE: 844-ASK-SHARE (844-275-7427)
The Study is being conducted at the Dr. Susan Love Research Foundation, in collaboration with City of Hope Comprehensive Cancer Center.
Click here to join the HOW Study or find out more.