The Study is being conducted at the Dr. Susan Love Research Foundation, in collaboration with City of Hope Comprehensive Cancer Center.
What is the Health of Women Study?
From the Dr. Susan Love Research Foundation website:
"The majority of women who get breast cancer have none of the known clinical risk factors. This means we don’t know what causes breast cancer or how to prevent it.
The HOW Study is a first-of-its-kind international online study for women and men with and without a history of breast cancer. We will collect information about your health, your job, your diet, and your family history, among other topics that can help us get a better understanding of breast cancer and its potential causes.
The HOW Study will track hundreds of thousands of women (and men) over time
to learn what causes breast cancer, and how to prevent it. HOW will also study long-term
breast cancer survivors in order to get a better understanding of how they are beating
the odds. This is the first time a study of this size and magnitude is collecting
data entirely online. We are excited by this approach because it will allow us to
ask every question any of us (including you) ever wanted answered. We believe this
is the first study that will allow the participants to submit questions they want
studied, and we are eager to hear what you want us to do!
Once you sign up to become a member of the HOW Study, you will receive periodic questionnaires that will ask questions about different health and exposure topics. Each new questionnaire will be released in a "Call to Action" email and will address a specific topic, such as reproductive health, cancer history (for those with breast cancer), environmental exposures, and much, much more. Each questionnaire should take about 60-90 minutes to fill out, and you will get a new one every three to four months.
This is a partnership, and we need you for the long haul. The more questionnaires you fill out, the more information we will have that can help us have a better understanding of why women get breast cancer."
Click here to join the HOW Study or find out more.
Normally, Bethany and other advocates from Maine travel to Washington, DC in May to participate in the annual training Summit and Lobby Day, where they meet with Maine’s congressional members or their staff. Although lobby day meetings were held virtually this year, advocates from Maine still met with Maine’s delegation to discuss legislative priorities that would positively impact research for a breast cancer vaccine as well as supports and resources for those living with and at risk for breast cancer. #NBCCOnTheHill
Some participants who fill out the survey will also be invited to participate in an optional sub-study, which includes a medical record review, a blood or saliva sample, and tumor analysis. Findings from the survey and optional sub-study may help the research team discover how to help people live longer after a diagnosis of metastatic breast cancer.
The study is recruiting internationally women and men age 18 or older who have been diagnosed with metastatic (or stage IV) breast cancer. Click here to learn more or to join the study.
AAW states, "Our wish is that our recipients hear the words 'you are cancer free' from their doctors and continue on their life journey." Visit the AAW website for more information or to submit an application.
The Medomak Valley High School Athletic Department, in conjunction with the Medomak Valley All Sports Boosters, held their Third Annual “Paws for the Cause” basketball game to benefit the Maine Breast Cancer Coalition on January 17, 2020 at Medomak Valley High School, when the Medomak Valley Panthers played host to the Oceanside Mariners.